Teenager’s Rare Digestive Condition Requires Ongoing Hospital Care

Emma’s diagnosis highlights challenges of Superior Mesenteric Artery syndrome

In November last year, 15-year-old Emma was taken to her GP after her parents noticed significant weight loss and the absence of her menstrual cycle for seven months. Following admission to hospital, doctors diagnosed her with a rare digestive disorder known as Superior Mesenteric Artery (SMA) syndrome.

Understanding SMA Syndrome

SMA syndrome occurs when a part of the small intestine is compressed, causing a blockage. This leads to severe abdominal pain after eating, even in small amounts. Recovery depends on the patient gaining weight to help reopen the compressed area. However, this presents a difficult situation, as eating causes pain but is necessary for weight gain.

Impact on Emma’s Life

Emma has experienced frequent hospital admissions since her diagnosis, which has been particularly challenging as she prepared for her GCSE examinations. The condition’s symptoms and treatment have significantly affected her daily life and education.

Support from Hospital Teams

Emma’s parents, Gary and Laurel, have expressed their gratitude towards the hospital’s Play Team and Education Team for their ongoing support throughout Emma’s treatment. These teams have assisted Emma and her family in managing the emotional and educational challenges associated with her condition and hospital stays.

Summary

• Emma, aged 15, was diagnosed with Superior Mesenteric Artery syndrome after weight loss and missed periods.
• The condition causes severe abdominal pain due to intestinal compression, complicating eating and recovery.
• Emma has had multiple hospital admissions while preparing for her GCSEs.
• Hospital Play and Education Teams have provided support to Emma and her family during this period.

Source: Leeds Hospitals Charity