Reggie’s Story: A Child’s Battle with Leukaemia

Seven Weeks of Isolation at Leeds Children’s Hospital

Five-year-old Reggie, who lives with Down’s Syndrome, was recently diagnosed with B-cell acute lymphoblastic leukaemia after weeks of illness. Prior to this diagnosis, Reggie had faced numerous medical challenges, including low muscle tone, hypermobility, serious infections, and feeding complications.

Following his diagnosis, Reggie spent three months on the oncology ward at Leeds Children’s Hospital. During seven of those weeks, he was placed in complete isolation due to his condition. This meant no shared spaces, no visitors apart from his parents, and no opportunity to play with other children. Additionally, Reggie was often too unwell to leave his bed.

Support from the Hospital Play Team

Despite the difficulties, the hospital’s Play Team provided regular visits to Reggie, bringing toys and crafts to his bedside. According to his father, Chris, the team made an effort to learn about Reggie’s favourite activities and coordinated with toy donors, especially during the Christmas period, to ensure he had items that brought him comfort and distraction during his treatment.

Ongoing Treatment and Challenges

Since his initial admission, Reggie has undergone several rounds of chemotherapy. His family continues to support him through the ongoing treatment process, which remains challenging given his complex health needs.

Summary of Reggie’s Medical and Treatment Journey

• Lives with Down’s Syndrome and associated health issues such as low muscle tone and hypermobility
• Diagnosed with B-cell acute lymphoblastic leukaemia after weeks of illness
• Spent three months on the oncology ward, including seven weeks in complete isolation
• Received regular visits from the hospital Play Team who provided toys and crafts
• Undergoing multiple rounds of chemotherapy as part of his treatment

Reggie’s story highlights the challenges faced by children undergoing cancer treatment, particularly those with additional health conditions, and the role of hospital support services in providing emotional and developmental care during extended hospital stays.

Source: Leeds Hospitals Charity